What habit changes did they have to make to address the illness?

Learn firsthand from an ”expert” who has “lived experience” with

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Part 1:Background Description


Age, marital status, ethnicity, gender identification

Geo area where they live, urban or rural?


Family info

Friends and social groups

Hobbies, recreation

How did you choose this person?

Note: Please do not use your interviewee’s actual name or even initials to keep them “anonymous”. Please do give a general idea of their place in life and relation to you – i. e. college student, grandmother, uncle, co-worker, caregiving client, babysitter’s mother, etc.

Part 2: Describe Illness/Treatment

Name of condition/disease

Duration of illness, date diagnosed

When did they first know they had it?

How did they approach getting medical help?

What diagnostic procedures were done? What were they like?

What treatment choices did they make? What were those like?

Are any difficult to remember or contend with?

What was the at-home medical regimen recommended?

What habit changes did they have to make to address the illness?

How are they doing now? What is their medical follow-up?

Were any aspects of dealing with the medical system hard?

Part 3: Illness Experience: Lessons Learned

What did they learn which they wish they might have known at the start?

Have they made any long-lasting lifestyle changes?

What did they learn on their own, which might benefit other patients with this same condition?

What do they wish to pass onto PH 401 Students who are future PH or healthcare professionals?

Did they develop or uncover strengths they did not know they had through this experience?

How did their condition affect their finances?

How did their condition affect their relationships?

How did their condition affect their work and/or hobbies?

Part 4:Your Summary & Analysis

Describe what learned of value from the person

Especially that which might help you in your future work

What surprised you?

What impressed you?

What barriers did they have to access care and then to the management of their condition?

What strengths and resources did they apply to cope that you noticed ?

Any rewards, negative reinforcements, punishments? Any diary-keeping? Any coaching?

Anything you can recommend in terms of habit change for them as PH students?

Anything you would like to take forward to remember in helping people who have medical conditions?


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What habit changes did they have to make to address the illness

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